Caregiving Community

Spotlight on BJ Miller, President and Counselor at Mettle Health: “Difficult Aspects of Caregiving”

Originally published on Medium

There’s this thing where people call caregivers “angels” and such and that can be this over-hyped putting-people-on-a-pedestal thing is problematic in a lot of ways because we all need to be caregivers. Don’t immortalize someone for thinking or caring about another human being because we should all be doing that. It’s also mundane, hard work, it’s not heroism.


Checking yourself, introspection and self-awareness are a huge piece of doing this as well. Check in with your gut; are you helping or hurting this situation?


The Bodily Tasks of Caregiving

We are back to this idea that caregivers are “angels.” Well, they’re actually just human beings. You get to be grossed out, you get to not want to do it, and you also get to have help if you need it.


This is a big thing that keeps folks from really getting into caregiving, oftentimes it’s seeing someone else go through all this brings up their own fears about illness or death, so there can be a lot to process and a lot to work through.


We have to get over this idea that “normal” people are independent and invulnerable and only those poor pitiful sick people need help. We all need help, all the time and this is natural. This is normal.


But just because helping someone or needing help is natural and normal doesn’t mean it’s not also hard or disgusting sometimes. There is nothing wrong with being grossed out. The trick is to try to find a way to stay. If you can’t stay, maybe you just need to find a way to get help.


If you’re on the receiving end of caregiving, it can become a little demoralizing at some point. The times I’ve been a patient, it’s good for me when I know my friends, family, doctors, nurses, or anyone else is learning something or gaining something from my situation. So, look out for lessons learned and anything that can add enrichment to your own life to go along with the hard stuff.


You care for your person and you care for yourself and you care for the good of humans. I wish more people had this idea to just be a good neighbor.


There is an activism to caregiving. There can be some pride and a lot of importance in it too. Life can be incredibly unfair, right up until love comes in at the end in the form of caregiving. There’s a sense of justice until the end and can make sense of a life that would have otherwise been so hard.


For more from BJ, check out the video series The Mechanics of Caregiving with BJ Miller


Dr. BJ Miller is a longtime hospice & palliative medicine physician and educator who has worked in all settings of care: hospital, clinic, residential facility, and home. He has been profiled in The New York Times Magazine, and interviewed on Super Soul Sunday, The Tim Ferriss Show, On Being with Krista Tippett, and has spoken at the Aspen Ideas Festival and around the world. BJ’s latest project, Mettle Health, aims to provide personalized, holistic consultations for any patient, caregiver or clinician who need help navigating the practical, emotional and existential issues that come with serious illness and disability. He also co-authored the book, A Beginner’s Guide to the End, which was released in 2019.


Republished with permission of the copyright.

Caregiving Community

Books We’re Loving

As many of us find ourselves in the unexpected role of caregiver, we turn to books to educate us, console us, and to remind us that we’re not on this journey alone. In no particular order, here are some staff picks that we’ve appreciated along the way.  

Already Toast

by Kate Washington

A Beginner’s Guide to the End

by BJ Miller, MD and Shoshana Berger

Toolkit for Caregivers

by Deidre Edwards


by Roz Jones

The Unexpected Journey of Caring

by Donna Thomson and Zachary White

Caregiving Community

Meet the CircleOf Team: Kerry Lange, COO & Chief Evangelist

CircleOf is an app designed for and by caregivers, so we wanted you to get to know the team beyond the technology. This week we meet Kerry Lange, who joined the team in July 2021 as COO and Chief Evangelist. 

Beginning in 2016, a series of seismic losses shook Kerry’s world and enlightened her to understand just how much support it can take – physical, emotional and pragmatic – to care for a loved one who is ill. The losses also transformed her life in other ways – from inspiring her to make a career change to getting permanent reminders of people she loved and lessons she’s learned.


CircleOf:  You suffered three major losses in a short period of time.Tell us about what happened.

Kerry:  My father died first of lung cancer in July of 2016. Shortly after that, my mom died of ovarian cancer on her birthday in January 2017. Then, my stepfather died of multiple myeloma in December 2017.

CircleOf:  Who did the caregiving for your family while they were ill?

Kerry:  My brother and I both lived in different states from our parents so we were lucky that my parents had family nearby. My aunts and uncles on both sides of the family helped out quite a bit.

My stepmom was the primary caregiver for my dad. My Mom and stepfather cared for each other while they could, but they were sick at the same time so my aunts nearby helped quite a bit. I would visit when I could, sometimes going to the doctor with them, and I was able to spend the last month of my Mom’s life living with them.

It was complicated because my stepfather had a bone marrow transplant shortly before my mom died, which meant he had to be in quarantine in a separate part of the house. His granddaughter came in to take care of him.

Multiple family members were there and helped make food and just tried to manage the day-to-day things that came up. There were church people who came by and brought meals and helped out too.

CircleOf:  What kind of help do you wish your family had that you didn’t have?

Kerry:  We were lucky that there were retired family members nearby who had the time and ability to help so my brother and I didn’t have to disrupt our lives to be there all the time. I recognize that not everybody has that, and not everybody can afford to take time off and go to doctor’s appointments with someone who is ill.

It would have been so helpful for us to have had a centralized place to track and communicate the status of where things were, what was being taken care of, and what we needed, and just emotionally connect with people in our inner circle and community, instead of the hodge-podge way of doing things. I remember sitting with my stepfather and his spreadsheet of medications – wow, it was a lot to manage! 

CircleOf:  How do you find that sharing lessons learned about caregiving is valuable for others?  

Kerry:  Most of my friends haven’t lost parents yet, but I’ve been able to share some of my experiences with those who have recently, and I think it’s helped them a lot. My grandmother recently passed away, and my stepmom and uncles all learned a lot from taking care of my dad, and that helped when it came to caring for my grandmother. I think we can learn with each experience and that information can help us get better at caregiving. Sharing those experiences with others can make it faster and easier for them to learn from us.

CircleOf:  How did all of this affect you professionally – in your career?

Kerry:  I had been doing freelance work in the agency world, and the death of my parents made me realize that I wanted to have more purpose in my life. The next year I joined Reimagine, a nonprofit that helps to break down taboos about how we face and talk about death and dying.

I joined CircleOf this year because I saw the caregiving experiences that my family went through, and I realized that not everybody has family nearby. I thought if I could help someone be able to be more present and available for their loved ones – less worried about how they were going to get things done – I wanted to help people have that.

CircleOf:  What are some of the other ways this experience transformed you?

Kerry:  Well, my mom wouldn’t love it, but I have three tattoos that are visible reminders, not only of the experience itself, but of what I carry forward from it.

I have a compass tattoo on my right wrist for my father because he inspired me to travel, and explore, and be curious. My stepsister and I got our tattoos on the Father’s Day after he died.

I have an owl tattoo for my mom. There was an owl that lived in her backyard, and I would go and chat with it every time I visited. I had a conversation with it the morning that my mom died – it was a beautiful connection. It left shortly after that – it just flew away and never came back.

The third one says, “This too shall pass.” I got that a few years later to remind me that when life is really hard, that this is going to change. Also, when things are going really well, things are going to change. It’s a reminder to me to just be present and that life is ever changing.

In more of an internal way, my experiences around death and caregiving helped me recognize that I can’t control everything, and to be comfortable with things unfolding naturally, and with vulnerability — it really tapped into a vulnerable space inside me where I realized I could show that I was hurting and didn’t have to have it all under control, it was okay to ask for help and let people in.Tough lesson to learn, but totally worth it.

Caregiving Community

8 Tips for First-Time Caregivers

You just became a caregiver.  NOW WHAT?

Often, this transition comes with no advance notice.  As you are leaving the hospital, the discharge planner says your loved one can no longer live independently. Suddenly, you are a caregiver. I often say, women have nine months to plan for motherhood, and nine seconds to plan for caregiving! 

If you provide any assistance to a loved one limited by illness or disability, you are a caregiver. Are you providing transportation to medical appointments?  Helping pay bills? I know. You say you are “just doing what you should do for someone you love.” However, if you are providing even one type of assistance, you are a caregiver. Most caregivers take on many roles beyond these. 

Here are eight simple tips to make this transition a little easier for you and your loved one. 

  1. Find the resources available to you. You are not alone. Many organizations now assist caregivers, as well as provide respite relief. Find the resources and support groups available to you. Start with your local community. Go online. You’ll find lots of assistance.  The “Circle Of” caregiving app is an excellent first stop. (
  2. Develop your own self-care plan.  Include rest, a healthy diet, and at least a little daily exercise. You will need the strength! Do not neglect your own doctor’s appointments. Your health is important, too.
  3. Each day, do something you love, even if it’s for only 30 minutes. Is it reading? Gardening? Chatting with friends? Continuing these activities helps you keep your own sense of identity. Don’t “lose yourself” while caring for your loved one. I’ve sadly heard many people say, “I don’t know who I am now that I’m no longer a caregiver.” Don’t let this be you. You want to come out of this role physically and emotionally well. Maintaining your friendships is also important. Re-connecting can be difficult after a long absence. 
  4. Allow yourself plenty of grace.  You will make mistakes. It’s OK.  Admit it. Tell your loved one you goofed. 
  5. Give yourself permission to say no. You can’t do everything all the time.
  6. Keep the lines of communication open with your loved one. Let them know what you need. Remember, this is a transition for them too.
  7. If you are struggling, seek help. Being a caregiver is Very Emotional.  It’s very difficult watching your loved one decline.  Sadness, guilt, anger and resentment are not uncommon. Confide in a friend. Talk with other caregivers. Seek counseling or a support group. 
  8. Don’t forget that you are still a daughter, sibling, spouse, etc. Spend time just being with your loved one, enjoying this relationship. Don’t lose sight of it. You will have sweet memories to reflect on later. 

You may be in this caregiving role for a long time.  Things will change.  You will become more confident and comfortable. You may have good days and bad days, but it will get easier. REMEMBER: you must take care of yourself so that you can continue to take care of your loved one.

For more from Toula, check out her book “Love Stories and Timeless Tips.”

​​Toula Wootan is a dynamic pioneer, dedicated to the mission of “caring for the caregiver” in Northeast Florida and nationally. In 2008 she founded the Caregiver Coalition of Northeast Florida. The mission of the Caregiver Coalition is to collectively elevate caregiving and improve the quality of life for caregivers in Northeast Florida. The motto is “You are not alone!” Toula was also the primary caregiver for her parents for five years. Since 2010, Toula’s weekly radio show, “Toula’s Tips for Caregivers” has offered advice to caregivers. Her mission is to be the voice of the caregiver, while offering resources and assistance to those who call in. Her guests include caregivers, respected national speakers and authors, business professionals, managers of local, state and federal programs and spiritual leaders who educate and entertain her audiences. Her show is on I-Heart, several other digital platforms and her site

Caregiving Community

Excerpt from: “The Unexpected Journey of Caring: The Transformation From Loved One to Caregiver” by Donna Thomson and Zachary White, PhD

Reprinted with permission of the copyright

A new caregiver will have many, many questions, but there are a few that are vital to ask in the early days: “Can I do this alone?” “Who will help me?” At first, identifying one friend or key ally who will promise to make personal support a priority will be a big first step toward positive action and healing in the caregiving family. Building a coordinated team of support will come later, but at first, securing a commitment of abiding friendship from a single support person is enough.

As days, weeks, and years pass, the caregiver is slowly transformed.

If the need for care grows incrementally, it may seem that at first, each helping task is perfectly doable. But taken together and over time, the burden of care may become overwhelming. This is especially true in the case of degenerative disease combined with the caregiver’s own aging and life or work responsibilities.

To survive long-term caring, a rearrangement of priorities is required, a coming to grips, a reconciliation of personal goals, a “settling in” to care. But sometimes there are natural barriers to making peace with caregiving. Caregivers may engage in a battle of priorities, culminating in making enemies of both work and home. They may crave multiple social connections and the consoling “noise” of an independent and bustling working life.

Does being “settled in” to a caring role represent liberation or captivity?

Being in the right place, doing the right thing is natural for young parents caring for their children. But what of an older parent caring for an adult child with disabilities? What about the kind of parental care that feels like a role reversal in the case of Alzheimer’s? At the start of a care journey, a caregiver might strive to finish caring tasks quickly in order to return to “normal” life. 

But with the passing of weeks and months spent in an intimate relationship with a loved one who is ill or infirm, time shifts, and the disorientation of the caregiver role is injected with routine that temporarily silences the chaos. Yet, amid the routine, ongoing tensions emerge that mark the caregiver role as infused with contradictory needs and desires.

On the one hand, a caregiver may stop wishing to be somewhere else. Being alone with a loved one can morph into a natural way to be. Then, a caregiver notices that the slowness and quiet of caring is in itself a presence, not an absence. Settling for the reduced ambitions of caring for a loved one opens a door to a life rich with humanity and meaning, but also a life that is difficult to explain to others—a life others say they admire but stop short of walking toward out of fear and misunderstanding.

Of course not everyone falls into a taxing but intimate rhythm of caring. If a loved one is suffering, the call to care can be a call to battle against pain and exhaustion. But in the absence of anguish, caring can become a quiet truce in a land that is foreign to most other people.

Here, there is the possibility of intimacy, of reflecting on hopes, dreams, and mortality. Here, there is the chance to be grateful for small joys and tender mercies. And with this enhanced connection, there is an unprecedented proximity to suffering, fear, grief, and doubt that few others know (or want to know). The true wisdom of caregiving lies in realizing that the meaning of care cannot be delayed until “it” is over because care changes us and our loved ones throughout the process. Caregivers can’t help but realize that their control of what happens is limited, but what they can affect is how they make sense of their experiences and how they use these stories to connect to others along the way. And even if these insights and wisdom are not present because home is too chaotic to experience stillness, caregivers will learn the meaning of forbearance—the essential ingredient in being able to proclaim with certainty, “I’m glad I stayed and did the right thing.” 

From The Unexpected Journey of Caring: The Transformation From Loved One to Caregiver by Donna Thomson and Zachary White, PhD with a foreword by Judy Woodruff. Rowman & Littlefield, 2019

Donna Thomson is a caregiver, author and family partner in health research. She is the co-author (with Zachary White, PhD) of The Unexpected Journey of Caring: The Transformation From Loved One to Caregiver and the author of The Four Walls of My Freedom: Lessons I’ve Learned From a Life of Caregiving

Caregiving Community

5 Questions with Rachel Donnelly

Rachel Donnelly is the Founder & CEO of Black Dress Consultants, where she helps manage end-of-life affairs so that individuals and families can stop wondering what they should be doing and get back to the things that matter.

Who do you care for (now and/or in the past)? What is your role/relationship?

I have cared for many members of my family in the past, including my grandmothers, father, mother and uncle. These loved ones have all since passed away and now I care for my amazing husband, son and daughter.

When did you start to realize you were a caregiver/end-of-life decision maker?

As a small-town doctor’s daughter, it was normal to be around those who were sick, aging or dying. I spent many days in my father’s office and accompanying him when he made house calls or rounds at the hospital. 

My caregiving journey officially began at age 13 when my father was diagnosed with cancer. Three years later, my mother, siblings and I had to make the difficult choice to discontinue life support and he passed away shortly after.

Unfortunately, years later, I had to make the same choice for my mother, which left my sister and me as the next-in-line caregiver for our uncle who was in the late stages of Parkinson’s Disease.

These circumstances forced me to grow up earlier than my peers and to make decisions around end-of-life that many have never considered so young. 

What helps you when you’re feeling overwhelmed by your caregiving/death/after loss responsibilities? What advice would you give to family caregivers in this situation?

There were countless times when I agonized over whether I was making the best decision for my loved ones. 

With each task and decision, I tried to remind myself that I was doing the best I could with the information and resources I had. Many times caregivers and family members are put in circumstances where they have to make decisions without knowing what their loved one would do or want. Sometimes, you just have to take a deep breath,  follow your gut and do the best you can.

I would encourage family caregivers to ask for help and when possible, outsource tasks to friends, family and/or professionals. You don’t and shouldn’t have to do this alone.

What is the one thing you know now that you would tell new family caregivers?

Do as much estate and legacy planning as possible NOW. And I’m not just referring to wills, power of attorney and advance care directives. These documents are crucial, but I also encourage family caregivers to document and preserve stories, traditions, photos, digital assets and other end-of-life wishes. 

How has caregiving/loss changed you?

While I jokingly refer to myself as a real-life Little Orphan Annie whose life should be subtitled “Death Becomes Her,” I realize now that my upbringing and experiences with caregiving, end-of-life and after loss led me to create something truly extraordinary, which is a business that I needed. Necessity is the mother of invention, right? 

I founded Black Dress Consultants to help family members and individuals manage the unavoidable logistics and administrative tasks of end-of-life. Every day, I wake up with a goal to help families grieve better, whether that is by making sure they’re more prepared beforehand or by taking tasks off their plate after a loss. 

Each phase of my life has been a learning experience, which I’ve tried to approach with laughter, knowing it truly is the best medicine.   

Caregiving Community

5 Questions with Roz Jones

In honor of National Family Caregivers Month, we spent time getting to know leaders who are making a difference in their community, and we want you to know them too. Roz Jones is a professional caregiver, coach, speaker and author based in Jacksonville, Florida. We highly recommend tuning in to her Clubhouse sessions or checking out her YouTube series!

1.    Who do you care for (now and/or in the past)? What is your role/relationship?

Currently I am a CNA [certified nursing assistant] who owns a Non-Medical Home Healthcare business. I do what I do to help the caregiver on their journey to reduce the S.O.S. on their journey. The relationship I have to my clients is a supportive companion for sharing stories, interests, and activities.

2.    When did you start to realize you were a caregiver?

I wasn’t even familiar with the term, to be honest. I didn’t understand the term until the nurse at the hospital told me I was giving great care to a patient who wasn’t related to me. The person I was advocating and caring for was a member of my church who asked me to go to the hospital with her while she was having surgery.

3.    What helps you when you’re feeling overwhelmed by your caregiving responsibilities?

I learned to speak new languages (hahaha). I also take naps.

I not only teach, but practice meditation in my club on Clubhouse. The club was initially a hobby for friends, but turned into a safe place for caregivers to discuss their needs for caregiving. And also self-care needs for themselves.

4.    What advice would you give to family caregivers in this situation?

Know and understand what you are saying YES to before you say YES. Be flexible and do your research on the diagnosis of the one you are taking care of to understand the accountability and responsibilities. Also, be honest when you are no longer able to provide care.

5.    What is the one thing you know now that you would tell new family caregivers?

It’s ok to say NO. It’s also ok to ask for help. Incredible things happen when you ask for help.

6.    How has caregiving changed you?

Having the spirit of service and nurturing.

Connect with Roz









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Spotlight: Jessica Zitter, MD MPH: “It’s Time to Acknowledge the Invisible Caregivers Among Us”

Originally published on The Society for Participatory Medicine Blog

I received an uncharacteristically anxious text from my friend Aileen: “I am having an emergency with my Mom. Please call ASAP.” When I last talked to Aileen, her mother’s dementia had been worsening slowly. A little more confusion, a stovetop left burning after cooking a meal.  But now, her mother was significantly more agitated and paranoid—pacing the halls, hearing music, convinced her family was plotting to kill her. She wasn’t sleeping, so Aileen and her father were on duty 24/7. It had become unsustainable. 

Aileen didn’t know what to do. She wanted to protect her mother, and feared triggering her mother’s panic by entrusting her to unfamiliar medical staff.  But I could see the writing on the wall—If they didn’t get professional help, they would fall apart.  I finally convinced her to go to the ER, clarifying that asking for help wasn’t a sign of weakness but a sign of strength.

Like most physicians, I never learned about the issue of family caregiver burden in my medical training. I hadn’t noticed caregivers in the halls of the hospital because I was trained to focus on the patient. But if the support structure around the patient is crumbling, the patient will, too. I became aware of this issue only after making a film about a friend who went home on hospice to die. But during the film’s editing process, I realized that her husband’s story was more urgent. I had thought of him as a secondary character, someone to open the door for the hospice nurse. But his continued deterioration over the course of the film was impossible to ignore. 

My friend Aileen is not unique. She is one of 53 million people caring for family members at home—that’s one in 5 Americans, and the number is rising fast. As families shrink and disperse, and rates of divorce and debt rates rise, we are entering the perfect storm.  And the stress of the pandemic has punched an extra hole in our already leaky boat.  Most caregivers like Aileen don’t have many other family members around to take shifts and help with the stress and work. So they become progressively exhausted, financially debilitated, isolated, and overwhelmed. Their own health suffers, too.

When Aileen checked her mother into the hospital, she got three days of rest and her first full night’s sleep in months. Her mother returned calmer, and was able to settle back home. But now they were anxious. It wasn’t a matter of if her mother would decompensate but when. The situation felt like a ticking time bomb.

So what can healthcare providers do to help caregivers like Aileen? Let’s start by identifying the caregivers associated with our patients. Caregivers are everywhere; it’s just a matter of looking for them. Many patients don’t realize that their wife or daughter is actually their caregiver, and many caregivers don’t realize that they are more than just a wife or daughter. Start by asking the patient: Who goes to the pharmacy for you? Who drove you to your appointment today? And remember that your patients might be caregivers too.

Once you’ve identified a caregiver, acknowledge their work—the love, sacrifice, and loyalty that it entails. Many caregivers have told me that simply having their physicians or nurses acknowledge these issues makes them feel empowered and less alone. Be sensitive to the fact that caregivers often experience guilt, shame, and feelings of inadequacy around their role. As such they are unlikely to ask for help. And even if they are open to getting help, they are also often too overwhelmed to utilize help. As healthcare providers, it’s our job to lean in and initiate support, not wait until caregivers are worn out and depleted.

Identification of a caregiver is also a good time to clarify the patient’s medical goals and encourage completion of a POLST form if appropriate. This will not only ensure goal-concordant care for the patient but will also help support the caregiver who will likely be the one tasked with making difficult decisions when the patient’s condition worsens. When I asked Aileen what treatments her mother would prefer in the event of major organ failure, she was adamant that her mother would not wish to be kept alive on machines and would prefer care focused on comfort. Not only did Aileen’s mother not have a POLST form, it had never been brought up by her physician.

Finally, after identifying caregivers and acknowledging their experience, we must connect them to helpful resources—professional and personal. Hospitals should be well-connected with the resources in their local community, and have personnel, often social workers, who can connect patients with resources like hospice, respite, support groups, educational programming, and other programs and benefits that can aid them in this journey.

Family caregiver burden is a rising public health crisis that will affect almost all of us eventually. As clinicians, we are in a prime position to offer help to this critical workforce.  It’s time for us to acknowledge the invisible caregivers among us.

Jessica Zitter, MD, MPH, specializes in Critical Care and Palliative Care medicine, and practices at a public hospital in the San Francisco Bay Area. She is the author of Extreme Measures: Finding a Better Path to the End of Life, and director of Caregiver: A Love Story.  

Republished with permission of the copyright. 

Caregiving Community

Podcasts We’re Loving

As busy as we all are nowadays, we’ve become huge fans of podcasts as a way to get up to speed on all things caregiving. We listen to a lot of them, and so should you.

Whether it’s on your morning commute, at the gym or while you’re cooking dinner, listening to podcasts is just the thing to get the information you need and to remember you’re not on this journey alone. In no particular order, here are ten of our favorites of the moment – share with a friend or keep for yourself.

Rodger That:

A weekly podcast that shares personal and practical insights on caring for a loved one with dementia, as well as tips to help caregivers prioritize their own emotional and mental well-being.


How We Got Here:

An interview-style podcast about what it means to give and receive care by talking to people about the circumstances that introduced them to caregiving and how these experiences changed them.


When I’m 64:

Personal stories, expert insights: How do we take care of each other during a pandemic? A health care crisis? When we’re 24 or 64? Our new podcast, When I’m 64, aims to shed light on these challenges by bringing together the real-life stories of caregivers and the insights of leading experts.

Happy Healthy Caregiver:

A show where real family caregivers share how to be happy and healthy while caring for others. Host and Certified Caregiving Consultant, Elizabeth Miller, shares her stories, tips, and speaks with others who are current or former family caregivers.

The Caregiver Coach Podcast:

Certified Dementia Coach & Practitioner, Benita Hampton, offers tools and tips to help you navigate the messy and the magical sides of caregiving. We discuss issues and topics that are relevant to caregivers and women just like you.

Caregiver Chronicles:

The podcast about our lives as caregivers. From autism to Alzheimer’s, we’ll look at being a caregiver both personally and professionally.

Daughterhood, The Podcast:

Hosted by Rosanne Corcoran, a primary, sandwich, in-home caregiver, this monthly podcast aims to provide insight into navigating the healthcare system, resources, support and community to those caring for their loved ones.

Parenting UP!:

Experience the intense journey of caregiver and comedian J Smiles. Listen and laugh along as her use of levity reveals the stress and rewards of caregiving interwoven with her own personal journey.

Good Grief:

On Good Grief we explore the losses that define our lives. Each week, host Cheryl Jones talks with people who have transformed themselves through the profound act of grieving. Why settle for surviving? Say yes to the many experiences that embody loss!

Alzheimer’s Speaks Radio:

Is about “Sound Information, Not Sound Bites.” We are true talk radio with a mission to raise all voices around the world – big and small. From a person diagnosed with a form of dementia or MCI, to family and friends, care partners, authors, researchers, support services, education, entertainment, advocacy work, to technology platforms, devices and support; all voices are welcome to have an interesting and respectful conversation with our host Lori La Bey.  ​​